Raising Awareness for Dementia

Join us in reducing stigma and improving lives through art and advocacy.

Get Involved

Art and Media

Creating impactful awareness through creative expressions.

Providing a voice for individuals living with dementia and their care partners.

Providing resources to equip dementia experts, care partners and the community.

Advocacy Efforts

Empowering the Dementia Community

Dementia Diagnosis and Care Survey Study

The purpose of this study is to learn about people's experiences with health care and what it was like around the time of a dementia diagnosis. We are interested in what stood out to you: what helped, what didn't, and what you wish had been different. Your perspective will help improve care, communication, and support for others affected by dementia.

If you choose to participate, you will be asked to complete an anonymous online survey that takes approximately 10 to 15 minutes. The survey includes questions about your understanding of dementia, your experiences with health care providers, and your reflections on the time of diagnosis.

Survey Link

You may access the survey here: Experiences Around Dementia Diagnosis and Care or scan the QR code.

Contact Information

If you have questions about the study, please contact:

Natalie Douglas, PhD, CCC-SLP, Principal Investigator Department of Communicative Disorders University of Louisiana at Lafayette Email: natalie.douglas@louisiana.edu Phone: 337-482-6489

C. Nathaniel Brown, Co-Principal Investigator Expose Dementia Email: exposedementia@gmail.com

*This study was deemed exempt by the IRB at the University of Louisiana at Lafayette, IRB-26-083-CODI

About us

At Expose Dementia, we harness the transformative power of the arts and media to raise awareness, foster empathy, and advocate for individuals and families affected by dementia, especially in the African American community. Through innovative storytelling, creative expression, and community engagement, we strive to educate, break down barriers, reduce stigma, increase early detection and treatment, improve the quality of life for those living with dementia, and empower individuals caring for others with dementia.

Embracing the Vision

Our vision at Expose Dementia is to create a world where dementia is met with understanding, compassion, and support, both in the African American community and the community at large. By leveraging the dynamic platforms of media and arts, we envision a future where every individual affected by dementia is seen, heard, and valued, and where communities come together to provide holistic care, resources, and opportunities for growth and connection.

A textured abstract background with bold strokes of orange and dark teal. Two pieces of paper with the words 'Art' and 'Advocacy' written on them are prominently placed in the center.

Our Services

We promote awareness, reduce stigma, and enhance lifestyles for those affected by dementia through arts and media.

Artistic Engagement

Participate in creative activities that foster connection and understanding for individuals living with dementia and caregivers through movies, books, art exhibits, and more.

Education and Advocacy

We partner with community organizations, churches, the medical community and dementia-support entities to engage the community with programs, resources, and support.

After we discover the needs in communities, we connect people with the resources they need to manage their conditions and live better, healthier lifestyles.